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Dana Reeve, Marc Buoniconti and Wheelchair Activists Rally for Passage of Christopher Reeve Paralysis Act (CRPA)
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Coalition endorses CRPA's clinical trial network to accelerate search to cure spinal cord injuries
April 12, 2005 LINK WASHINGTON - Under the banner of CureParalysisNow.org, over 150 wheelchair activists from the Christopher Reeve Paralysis Foundation, The Miami Project to Cure Paralysis, The Spinal Cord Injury Project and the online CareCure Community joined together with members of Congress to voice their support for the Christopher Reeve Paralysis Act and funding to establish a clinical trial network for spinal cord injuries today on the West Steps of the U.S. Capitol. Organized by volunteer grassroots activists from the online CareCure Community of over 9,000 members, the 10 am rally is a "first" for the largely invisible disabled population. "This is an amazing opportunity to further Christopher Reeve's legacy," explained a jubilant Betheny Winkler, one of the organizers. "It's inspiring to see all of these people travel so far under difficult circumstances to achieve one common goal." Passing this important piece of legislation would encourage collaborative research which would ideally bring better treatments and cures to people faster. The legislation advances cooperation in research, rehabilitation and quality of life programs for people living with paralysis. "There is no question that we all still feel Christopher's loss so keenly right now. But seeing everyone here today, I know this is the right moment to transform our grief into hope and work together to pass the Christopher Reeve Paralysis Act, in his honor," said Dana Reeve, Chairman of the Christopher Reeve Paralysis Foundation. Following the event the participants met with their legislators to urge support for the Christopher Reeve Paralysis Act. Justin Richardson, a 24-year-old college student who had to travel to Israel for an experimental treatment only days after a devastating spinal cord injury, explained, "We need a clinical trial network here in the United States. Victims of spinal cord injuries deserve to benefit from the latest that science has to offer." The Miami Project's Marc Buoniconti added, "I've been working on this issue for the past 20 years and we know we are getting closer to a cure every day. The government is in the unique position to enable the acceleration of that progress through increased federal funding that will cultivate the cures of tomorrow." "We have the technology today, the science is there, and now it just needs a push from Congress," proclaimed Dr. Wise Young, a pre-eminent neuroscientist in the field of spinal cord injury from the W. M. Keck Center for Collaborative Neuroscience at Rutgers University. "We owe it to humanity to do everything in our power to find a cure for spinal cord injuries." The group was joined onstage by Rep. James Langevin (D-RI) the only spinal cord injured Member of Congress, Senators Tom Harkin (D-IA) and Lindsey Graham (R-SC) (more members to be confirmed). Christopher Reeve Paralysis Foundation Contact: Aaron Toso, Cause Communications – 303.292.1524 or toso@causecommunications.com Colleen Dermody, On Behalf of Christopher Reeve Paralysis Foundation – 202-887-0500 x18 or cdermody@witeckcombs.com Scott Roy, The Miami Project to Cure Paralysis – 305 243-8939 or sroy@miami.edu |